Today we came into the city to see Dr. Hoffman and Dr. Frieden for some routine appointments. We saw Dr. Hoffman first and he said he just wants Charlie's fontanel (soft spot) to be more closed before surgery but he gave us the okay to schedule surgery just after the first of the year (which has been our plan all along). We don't have the exact date yet but I'll keep you posted. Once he has his first surgery he will heal for about 3 weeks, we will fill the bubbles in SF for 12 weeks and then a removal surgery. Then he'll heal for 3-4 months and then we will do it all again. It sounds a little crazy but I'm so excited for him to have surgery. At this point I want to it done and over with so we can move forward with our lives and the nevus will be a distant memory.
Our appointment with Dr. Frieden was pretty basic and routine. We won't see her for awhile now (6 months) since we have surgery coming up but we will always see her, even after removal.
One of the best parts of the day was when we stepped into the elevator at Dr. Hoffman's office there was a little girl who was about 2 years old with a medium sized nevus on her face. We have become friends with so many nevi owners and their families through the Facebook groups we are a part of but this is the first time we have ever met someone in person. Sadly the family didn't speak English so it made it hard to chat but it was still really cool.
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