Day 3 Post Surgery

Yesterday started off well. Charlie ate a good breakfast and was much happier. We started him on his antibiotic, Bactrim, to prevent post-operative infection. We hadn't given it to him on Friday because we was so miserable. After we gave him his first dose he stopped eating. At the time I didn't think much of it considering he had just had surgery. He had one episode where I thought he vomited and swallowed it but I wasn't sure. He refused lunch and dinner yesterday. Last night he started having diarrhea and around 11pm he started vomiting. After an hour or so I called our local advice nurse because he was due for a dose of pain meds and couldn't have them because he was vomiting. So between being in pain, being nauseous and tired, he was miserable. The advice nurse told us to call the surgeon. He said he wanted us to take him back to ER for IV fluids and anti-nausea meds.

So around 2am my mom and I arrived at the ER. it was almost two hours before they called us back. It was horrible. Once back there they have him some Zofran for the nausea and then prepped his arm and hand with Emla cream in case he did need an IV. After that we were essentially ignored by the nurses and docs. By 6:00am we just wanted to leave. So they gave us a prescription for Zofran and we left.

The rest of the day has been pretty uneventful. He is waking up from naps really upset and seems to be in pain but we are managing it with Tylenol and Ibuprofen. He has been eating a little most of the day and then tonight we gave him a piece of pizza which he DEVOURED!

The one complication we are still having is diarrhea. It is worse than yesterday and really bad. I think it's a result of his stomach still being upset from yesterday.

Changing his diapers is actually one of the worst parts. When we lay him on his back we try and put his head on the place without an expander but he has expanders almost all around the back. So he freezes when we lay him down like he's afraid to move because it hurts. He cries and moves his little eyes but won't move his head. It's always heartbreaking. I've tried doing it standing up but with the diarrhea it's impossible.

As I've said every update, I'm really hoping for sleep. Last night I didn't get any sleep until about 6:30am this morning and then I've only been able to get in two short naps. I honestly don't think I've ever been this tired in my whole life.

You can see from these pics from last night that his little eye is almost swollen shut.